IMPROVING THE LIVES OF ADULT CYSTIC FIBROSIS PATIENTS
Since founding Spiritus Project in March, 2015, we've provided over 650 hospital admission bags and refill bags to North Carolina-based adult cystic fibrosis patients. We've also provided nearly $160,000 in response to 350 patient requests for assistance.
With your help, the all-volunteer team at Spiritus Project has positively impacted well over 500 patients, family, caregivers and other related parties. THANK YOU!
Recent examples of financial assistance provided to patients include:
- Q3 and Q4, 2018 - We set a record for delivering over 160 hospital admission and refill bags this year. We also provided nearly $90,000 of financial assistance in response to over 220 requests from patients, bringing the total value of benefits provided in 2018 to over $100,000. The chart below provides a bit of info on the various categories:
- Q2, 2018 - Thru mid-June, we've received over 100 requests for assistance in 2018 (compared to about 125 for all of 2017)! The majority of the requests continue to be for help paying medical and hospital bills, followed by housing, transportation and food. Most of the medical and hospital bills are payments to UNC, housing payments are caused by impacts to income while hospitalized (for rent or temporary lodging), transportation payments are for gas to get to/from medical appointments or hospitalizations, and food assistance to help offset payments for other cystic fibrosis needs.
- April, 2018 - While conducting the 2018 Spiritus Masters golf tournament to raise funds for Spiritus Project, we received over 20 requests. The majority of requests were for help with hospital bills, followed by housing and transportation.
- March, 2018 - We received 15 requests in March, putting us at nearly 60 requests for 2018. The majority of requests were for hospital bills, food, utilities and housing as patients struggle to stay above water financially.
- February, 2018 - We received 24 requests for assistance in February, putting us at over 40 requests for 2018. The trend for more help with hospital and medical bills continues to be evident, as are increased requests for assistance related to impacts from the flu. Requests for food, transportation and utilities continues to be high as the winter weather continues.
- January, 2018 - It is apparent that the extended cold weather and flu season is having an impact on patients. We received nearly 20 requests for assistance (making this our busiest month ever), mostly for essentials such as help with utilities, food, housing and transportation that arose as a result of recent hospitalizations. However, we are starting to see increased requests for assistance with overdue hospital bills as the frequency of hospitalizations continues.
- December, 2017 - Again, helped several patients with basic necessities such as housing, food, utility and transportation. Provided financial assistance for legal assistance to prevent foreclosure. Provided assistance to cover in-home care for end-stage patient.
- November, 2017 - Our busiest month ever - nearly 20 requests for assistance received! Helped numerous patients with housing, food, utility and transportation needs. Provided financial assistance for uncovered in-home assistance. Provided educational assistance. Provided new equipment to UNC staff to store and manage Spiritus bags.
- October, 2017 - Purchased dehumidifier to improve air quality in patient home. Provided transportation and food assistance for extended hospitalization. Helped with auto repairs to insure patient could get to required appointments. Provided assistance with rent, utilities and food for several patients.
- September, 2017 - Provided assistance with rent and food for several patients. Paid medical bills for patient. Helped purchase generator for patient to allow treatments to continue during power outage. Paid a retainer for attorney to help avoid foreclosure for patient and family due to damage sustained in hurricane Matthew. Provided transportation assistance for patient to doctor appointments.
- August, 2017 - Provided mobile medical equipment not covered by insurance for patient to facilitate lengthy ride to/from hospital.
- July, 2017 - Provided food assistance for patient family. Provided temporary housing assistance for patient family during move that occurred during patient hospital stay. Paid medical bills for patient so that needed appointments could be scheduled once again. Paid cell phone bills for several patients so that doctors and pharmacy can be in touch again. Provided assistance with rent for patient who was out of work during recent hospitalization. Provided assistance with utility bills for several patients.
- June, 2017 - Provided funding for medical devices not covered by insurance for several patients. Provided financial assistance for uncovered medical expenses for several patients. Assisted with replacement of broken air conditioning. Assisted family with funeral expenses for recently deceased patient. Provided food, lodging and transportation assistance for clinic appointment. Provided food assistance for patient due to gap in family income due to illness and hospitalization. Provided insurance and utility assistance for hospitalized patient.
- May, 2017 - Provided financial assistance for major auto repair that prevented them from getting necessary medical attention. Provided financial assistance for utilities for several patients. Provided emergency rent assistance due to loss of income associated with hospitalization. Provided funds for computer repairs. Provided assistance with car payments due to extra costs associated with transplant evaluation.
- April, 2017 - Provided funding for emergency transportation to assist a patient to UNC Hospital. Provided financial assistance to a patient facing imminent disconnection of power. Provided financial assistance to a patient for phone, utilities and insurance. Paid for eye exam for patient.
- March, 2017 - Provided financial assistance with rent and utilities to cover loss of income from job due to extended hospitalization. Provided building supplies needed for completion of small residence for patient. Provided financial assistance for transportation and child care to facilitate patient hospitalization on accelerated schedule. Provided financial assistance with transportation and utilities expenses. Provided required exercise equipment for maintaining lung function to replace older, broken equipment. Provided emergency financial assistance to pay mortgage for patient awaiting lung transplant.
- January, 2017 - Provided financial assistance to assist with non-covered expenses associated with double lung transplant. Provided financial assistance to help with initial expenses for construction of small residence for patient displaced by Hurricane Matthew. Provided financial assistance with housing expenses and medical co-pays due to hospitalization. In the last week of January alone, we provided assistance with housing/relocation, physical therapy, car payments due to job loss by a parent caring for an adult child with cystic fibrosis, and a technology assistance request for vocational training for a patient.
Go here to complete a form to request assistance.